Hello everyone, I can't believe another year has gone by. I am so happy to be able to provide updates on this blog and give some hope to those that are reading it. I continue to keep in touch folks that I have met through the years and am excited to see people are living longer post transplant.
I really owe my followers and folks that have posted comments an apology. I had been having trouble with the platform and was not seeing the messages and posts that folks were making. I just found many older comments and I am disappointed that I was not able to find them more timely. If you posted in the past and still want to connect, please post again. I will check weekly going forward.
Please reach out if you have questions or comments. If you post I will review and answer. If you want to keep your post private, say that in the post and I will not make it public. Please provide a way for me to send you an e-mail if you want to stay private.
There is a group on facebook that I belong to that is very active in all things TPLL. The name of the group is: T-cell Prolymphocytic Leukemia (T-PLL). It is a private group so you will need to request to become a member. There are currently 362 members.
Wishing everyone dealing with this disease, both patient and caregivers, a happy Thanksgiving, Christmas/Holiday and New Year.
As I have said, I will continue to provide periodic updates so you know I am doing well.
3 comments:
Hi Bill, I’m sure you hear all the time how inspiring your journey has been, and I am happy to have found you. I hope you are still doing well. If I leave an email would you be able to connect with me for further discussion. I’m still a fairly young TPLL patient at age 48, still fighting after 2 BMT. Thanks
angdabbott@gmail.com
Bill I was diagnosed with P-TLL a couple of months ago. I am curious as to what hospital took care of you??
Hi, I had my BMT at Moffitt in Tampa Florida. My doctor has since moved to Mayo Clinic in Jacksonville Florida.
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