Wednesday, November 9, 2022

Post #79 - Happy Anniversary - 12 years post transplant

 

Hello everyone, I can't believe another year has gone by. I am so happy to be able to provide updates on this blog and give some hope to those that are reading it. I continue to keep in touch folks that I have met through the years and am excited to see people are living longer post transplant. 

I really owe my followers and folks that have posted comments an apology.  I had been having trouble with the platform and was not seeing the messages and posts that folks were making.  I just found many older comments and I am disappointed that I was not able to find them more timely.  If you posted in the past and still want to connect, please post again.  I will check weekly going forward.

Please reach out if you have questions or comments.  If you post I will review and answer. If you want to keep your post private, say that in the post and I will not make it public. Please provide a way for me to send you an e-mail if you want to stay private.

There is a group on facebook that I belong to that is very active in all things TPLL.  The name of the group is:  T-cell Prolymphocytic Leukemia (T-PLL).  It is a private group so you will need to request to become a member.  There are currently 362 members.

Wishing everyone dealing with this disease, both patient and caregivers, a happy Thanksgiving, Christmas/Holiday and New Year. 

 As I have said, I will continue to provide periodic updates so you know I am doing well.

3 comments:

Angela Abbott said...

Hi Bill, I’m sure you hear all the time how inspiring your journey has been, and I am happy to have found you. I hope you are still doing well. If I leave an email would you be able to connect with me for further discussion. I’m still a fairly young TPLL patient at age 48, still fighting after 2 BMT. Thanks
angdabbott@gmail.com

Anonymous said...

Bill I was diagnosed with P-TLL a couple of months ago. I am curious as to what hospital took care of you??

Bill said...

Hi, I had my BMT at Moffitt in Tampa Florida. My doctor has since moved to Mayo Clinic in Jacksonville Florida.