Bert recently had his transplant on October 5, 2016. Bert is T +33 as of today and so far things are going well.
Chaaya from England has been communicating with Bill. Her friend just recently finished Campath and waiting for his transplant date. Both of his sisters were a match, his brother was not. Chaaya keeps Bill informed of her friends progress. We wish him a smooth and easy transplant.
Larry Basil is T + 395. Larry has run into some problems in the last few months. He is currently dealing with graft vs host disease in his liver. He is being treated at Moffitt with prednisone. We are keeping Larry and his wife Donna in our thoughts and prayers. Bill communicates with Larry on a regular basis. We are hoping to see Larry when we go to Moffitt next week for Bill's check up. A few weeks ago, Christine Jameson visited Larry in Florida. I know it was special for Larry and bitter sweet for Christine.
On a sad note, Kyle Jameson did not make it through is journey. He leaves behind his wonderful and supportive wife Christine and son Liam. On Day T + 33, May 15, 2016 Kyle passed. Both Bill and I were very sadden by the news. Kyle and Christine fought the fight as best they could. Christine has some of the most amazing pictures of her and Kyle on her Facebook page . One of my favorite is below.
Please continue to read the blog and know that we will always provide an update so you know how Bill is doing. If you would like to contact us, please leave a response with info on how to get in touch, we will not post your personal information.
3 comments:
Hello from Scandinavia! I was diagnosed T-PLL four years ago and recieved an allogenious stem cell transplant on May 14th in 2014. Soon I'll hit 1000 days and with no signs of this rare luekemia ever since. I'm a female, 52 years old and feeling almost normal by now. I still have to take some cortison against the chronical gvh of the liver. I was happy to hear of your 6 years celebration! I hope I get lucky, too and see more years. That would rare indeed!
Best of luck with your continued recovery Bill.
My wife, Zahra, is around 45 days + T now, and she is doing really well.
There are not many cases of TP-LL Especially in the UK (we live in Cheshire and are under the excellent care of the Christie Cancer hospital in Manchester).
Thank you for making this blog happen, I could find very little resource around this rare sub-strain, and reading this helped me learn a little more during the very worrying months during which we were learning about this.
I have signed up to follow your updates, and will follow with interest.
Regards,
Roger
I am happy to hear that your wife is doing really well. Thank you for your kind words regarding the blog. We felt it important to leave a trail for those that need information on T-PLL.
We have heard from folks all over the world and are happy to provide hope. I am 6 1/2 years post transplant and happy to be an inspiration.
Please provide updates on your wife's journey, as your (you and her) story will provide hope as well for others that follow.
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