Nick, Thanks for your response. I am sorry for the delay in getting back to you. We are familiar with Dr. Claire Dearden's article. The reason we stated that the IV Campath treatment is rough was based on the writting by Dennis W. Pyritz, RN, BA, BSN on his blog "Diary of an illness". You can view his blog from the link on our blog.
We do not have any experience with IV treatment, only sub-Q
3 comments:
Hi Nick
I am a T-PLL patient and I can only say THANK YOU for this blog. Please keep me updated on Bill's recovery as it is very important to me given that I am going through the same process.
Kind regards
Ben
This isn't a specific reponse to Nick. I'm not sure how to make a general comment/question. My father was just diagnosed and I wanted to see if you know of any doctors who specialize in this disease? Or any hospitals that are better than others?
Thank you!
Christine
Diagnosed with TPLL in August 2014. Watch and wait until now. I just started Campath last week at Moffitt, tough first day tremors, blood pressure drop and anxiety had to stop before getting full 3 mg. Second treatment went better finished 3 mg. Monday will be uincreased to 10mg. Got to ask the doctor about clabdrine. Encouraged and hopeful after reading about your success ! this is a tough disease for sure
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