Wednesday, November 9, 2022

Post #79 - Happy Anniversary - 12 years post transplant

 

Hello everyone, I can't believe another year has gone by. I am so happy to be able to provide updates on this blog and give some hope to those that are reading it. I continue to keep in touch folks that I have met through the years and am excited to see people are living longer post transplant. 

I really owe my followers and folks that have posted comments an apology.  I had been having trouble with the platform and was not seeing the messages and posts that folks were making.  I just found many older comments and I am disappointed that I was not able to find them more timely.  If you posted in the past and still want to connect, please post again.  I will check weekly going forward.

Please reach out if you have questions or comments.  If you post I will review and answer. If you want to keep your post private, say that in the post and I will not make it public. Please provide a way for me to send you an e-mail if you want to stay private.

There is a group on facebook that I belong to that is very active in all things TPLL.  The name of the group is:  T-cell Prolymphocytic Leukemia (T-PLL).  It is a private group so you will need to request to become a member.  There are currently 362 members.

Wishing everyone dealing with this disease, both patient and caregivers, a happy Thanksgiving, Christmas/Holiday and New Year. 

 As I have said, I will continue to provide periodic updates so you know I am doing well.

Saturday, May 28, 2022

Post # 78 - I'm still here!!

 Hello everyone, it has been two and a half years since our last post.  I am so sorry that I have been away for that long.  I have been active in a TPLL facebook group and have been in communication with many that have found this blog.  I am so happy that I was able to leave a path for others to find.


I am doing well.  Had my last check in with Dr. Ayala at Mayo in Jacksonville about six months ago and everything is in the normal ranges.  

Hope you have found this blog helpful and it continues to help others.


Bill