Post # 73 - Six Years Post Transplant - Day T + 2,191

Today marks 6 years post transplant for Bill.   Bill has his six year check up with Moffitt next week.  I am so happy with his success and health post transplant.

Bert recently had his transplant on October 5, 2016.  Bert is T +33 as of today and so far things are going well.

Chaaya from England has been communicating with Bill.  Her friend just recently finished Campath and waiting for his transplant date. Both of his sisters were a match, his brother was not.   Chaaya keeps Bill informed of her friends progress.  We wish him a smooth and easy transplant.

Larry Basil is T + 395.  Larry has run into some problems in the last few months.  He is currently dealing with graft vs host disease in his liver.  He is being treated at Moffitt with prednisone.  We are keeping Larry and his wife Donna in our thoughts and prayers.  Bill communicates with Larry on a regular basis.  We are hoping to see Larry when we go to Moffitt next week for Bill's check up.  A few weeks ago, Christine Jameson visited Larry in Florida.  I know it was special for Larry and bitter sweet for Christine. 

 On a sad note, Kyle Jameson did not make it through is journey.  He leaves behind his wonderful and supportive wife Christine and son Liam. On Day T + 33, May 15, 2016 Kyle passed.  Both Bill and I were very sadden by the news.  Kyle and Christine fought the fight as best they could.  Christine has some of the most amazing pictures of her and Kyle on her Facebook page .  One of my favorite is below.




Please continue to read the blog and know that we will always provide an update so you know how Bill is doing.  If you would like to contact us, please leave a response with info on how to get in touch, we will not post your personal information.

Post # 71  Responding to a few friends that have found us through the blog
Betsy contacted us in November of 2015 after the reading our blog.  Her significant other, Bert was diagnosed with TPLL and was starting his journey.  We met for a lovely dinner in Titusville, FL and had great conversation learning about each other and answering questions they had.  Bill and I wish them the best of luck on their journey.

Christine and Kyle Jameson contacted us on Jan, 22 2016 after they read the blog.  Kyle is on his journey towards transplant, which is scheduled for approximately April 15th.  Kyle is a strong young man who has a donor and has a strong caregiver/advocate, his wife.  That, with his great attitude will help him through this journey.  We think about Kyle and Christine everyday and follow them on Facebook.  It is heart felt to see the number of followers they have and the amount of support and prayers they receive.  Christine, Kyle and their baby boy Liam are temporarily living in Manhattan for the transplant to be performed at Sloan Kettering.  They live in New Hampshire and have been away from home for several months now.  Please keep them in your thoughts and prayers.

May of 2015 Kathi Haehnel contacted us through the blog and is on her journey, Bill spoke with Kathi back then.  Hope her journey is going well and we wish her the best.

Larry Basil is six months out post transplant and is doing well.  Larry is undergoing his six month testing at Moffitt this week, we wish him well.

The most recent post was yesterday April 1st from Marilyn who lives in Australia. We are happy that you found our blog, it is there to give hope to those that follow us.  Having a transplant is a decision that only you, your family and your doctor can make.  There are many factors that come in to play such as age and health.  With the lung issues you have had, the Pulmonary Function Testing that is required to determine if you are a candidate may be a challenge for you.  We have heard of people your age that have been candidates if they are healthy and strong.  We are happy to help you in any way we can.  If you would like to contact us, please leave a post with your e-mail or skype name.  We will not publish the post, so your information will be confidential.