Post # 58 - Today is a special day!!!

Happy Birthday to Bill!!!!!

Today is Bill's birthday and a wonderful one it is. There were days while he was in the hospital where we had some concerns that we would never see another birthday. Thankfully that is all behind us. Today is day 212 post transplant.

I do apologize for the time between posts, I have wanted to update, but have been very busy with ........ things. Bill is doing well. He is down to monthly visits with the transplant doctor. His counts and bone marrow results are all moving in the right direction. Bill is still dealing with the bladder problem. He had a cystoscopy two weeks ago and we learned that he has Interstitial Cystitis. There is no real cure and only time will tell if the condition will improve.

Interstitial cystitis (IC) is a condition that results in recurring discomfort or pain in the bladder and the surrounding pelvic region. The symptoms vary from case to case and even in the same individual. People may experience mild discomfort, pressure, tenderness, or intense pain in the bladder and pelvic area. Symptoms may include an urgent need to urinate, a frequent need to urinate, or a combination of these symptoms. Pain may change in intensity as the bladder fills with urine or as it empties.

During the last visit with the Dr. he informed Bill his case was one of the most difficult he has handled. His immune system is still young and immature so precautions are still necessary. Food is still something that we are very careful with and Bill wears a mask when ever he is out of the house. Bill is driving again. He as been to the local store a few times and drove to a doctor appointment in town. Walking and even talking for an extended period of time is very tiring to Bill. He gets fatigued very quickly. All to be expected.

Other than that his weight is stable, he is doing well and feels good.

Thanks for following and sending your prayers, love and support.

Mike