Welcome
I am new to the world of blogging.  My motivation to create this blog comes from the hope that I received after reading several blogs that I found after being diagnosed with T-PLL.  The journy that each of these individuals documented helped me find the information that I was looking for that I could not find anywhere else.  My hopes are that this blog will provide the same type of information -  my journey, as every case and path is different.

As each person blogs and documents their journey we create a research tool that may hopefully be used by not only those diagnosed with T-PLL, but those interested in finding a cure.  We need to keep the word alive and continue to document our story to leave a trail.